Accessing our service

We aim to make access to our service as simple as possible. Our resources are limited but we are always available to talk

Early Intervention Service

As a parent or carer, you can contact us directly to refer your child to our early intervention service, Better Start, Better Future. This service is for babies, with a high risk of and /or evolving cerebral palsy, from birth up until the age of 2, however, to access this service a referral needs to be made.

To start, we will ask about your child’s birth history and the concerns that you may have. If appropriate we will arrange for you and your child to have an Initial Consultation appointment with our Family Support Coordinator and a senior therapist. From that appointment, your child may then be offered regular therapy appointments until the age of 2. A further therapy appointment will be offered when your child is 3. Our early intervention service, Better Start, Better Future is funded through charitable donations.

NHS Community Therapy Team

Your child may be referred to our service by your local NHS Community Therapy Team. Around 20% of our funding comes from service level agreements with the seven Local Health Boards (LHB’s) in Wales and a certain number of children are referred to us each year from the LHBs. These children are usually 3 ½ and older but the NHS teams also refer babies to our early intervention service, Better Start, Better Future. Some of the services we provide for the LHB’s occur in our centre and others in the local community, always working closely with the NHS Community Therapy Teams, aiming to provide a seamless provision between us.

Funded projects

Occasionally we receive grant funding for specific projects, which means we can offer therapy to some of the older children. When we have opportunities like this, selecting the children to attend is prioritised on their clinical need, how long since we have seen them and the specialist nature of the project. Examples of these projects have been the Jungle Explorers programme for children with unilateral cerebral palsy and the Night at the Museum programme for children with complex cerebral palsy (GMFCS levels IV and V). Positive feedback and results from the outcome measures of these programmes means we are aiming to secure more funding for programmes like this in the future.

How we have helped in Wales

110

Family support appointments took place in 2018-19

286

Children from across Wales have been treated during 2018-19

1,682

The number of sessions of specialist therapy we delivered in 2018-19

a girl in a park with her mum

Aoife's Story

Having virtual sessions opened up a new avenue of skill-building for Aoife

- Family story

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Clara With Mum Sera Jane

Clara’s story

When we completed our first baby block of 6 weeks of therapy at Cerebral Palsy Cymru’s therapy centre it was a life-changer. We are truly grateful to have found such help and guidance amongst the darkness, we can now look forward to the future, thanks to Cerebral Palsy Cymru.

- Family Story

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Volunteer with home made cake sale

Pam Perry

I started to Bake for Bobath in 2014 as a fun way of saying thank you to Bobath for the amazing therapy they have given my granddaughter.

Held at home, a small gathering of friends with plenty of cake and coffee plus donations, £97.00, not bad I thought. Still held at home it is an annual event on m…

- Volunteer Fundraiser

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Sienna

Sienna’s story

The early intervention programme, has been such a comfort to us as we were doing something positive from pretty much day one for Sienna. The support and comfort that Cerebral Palsy Cymru provides means that the therapy doesn’t just stop with the child who receives it, the whole family benefits.

- Family Story

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Volunteer head shot

Fred Soper

Being a volunteer for Cerebral Palsy Cymru means I can give something back to my community. I was a customer at Crwys road and liked the atmosphere that the manager created. The volunteers are happy and the manager is kind-hearted and good with everyone so when I got the opportunity to volunteer my …

- Volunteer

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