Useful Resources

There are lots of very useful resources from across the world

There are lots of very useful resources from around the world for individuals living with cerebral palsy and their families.

Cerebral palsy is the most common physical disability in children. There are currently 17 million people in the world who have cerebral palsy.

In Wales no one knows how many people with cerebral palsy there are. This is why we are co-leading a project to develop a cerebral palsy register for Wales. https://cerebralpalsyregister.wales. Using data from other countries we think there are around 1800 children in Wales who have cerebral palsy and that approximately 70 babies are born every year in Wales who will be diagnosed with the condition.

The following are websites you may find useful:

The Canchild website has some excellent resources and a great team.

https://www.canchild.ca/

https://www.canchild.ca/en/resources/264-cp-the-brain-video

https://canchild.ca/en/the-icf-for-parents-p-icf

https://www.canchild.ca/en/research-in-practice/f-words-in-childhood-disability

https://www.canchild.ca/en/resources/266-letting-go-at-least-a-little-bit

https://www.canchild.ca/en/resources/268-pain-prevention-and-treatment-in-children-and-young-people-with-cerebral-palsy

https://canchild.ca/en/resources/237-motor-growth-curves

https://canchild.ca/en/resources/23-if-i-knew-then-what-i-know-now-parents-reflections-on-raising-children-with-cerebral-palsy

 

Pencru

http://www.pencru.org/evidence/

 

Scope

https://www.scope.org.uk/

 

Cerebra

https://cerebra.org.uk/


Nice guidelines

Nice spasticity guidelines

https://www.nice.org.uk/guidance/cg145

Nice managing cerebral palsy in under 19’s guidance

https://www.nice.org.uk/guidance/ng62

 

World cerebral palsy day

https://worldcpday.org/

How we have helped in Wales

110

Family support appointments took place in 2018-19

286

Children from across Wales have been treated during 2018-19

1,682

The number of sessions of specialist therapy we delivered in 2018-19

Clara With Mum Sera Jane

Clara’s story

When we completed our first baby block of 6 weeks of therapy at Cerebral Palsy Cymru’s therapy centre it was a life-changer. We are truly grateful to have found such help and guidance amongst the darkness, we can now look forward to the future, thanks to Cerebral Palsy Cymru.

- Family Story

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Pam Perry

I started to Bake for Bobath in 2014 as a fun way of saying thank you to Bobath for the amazing therapy they have given my granddaughter.

Held at home, a small gathering of friends with plenty of cake and coffee plus donations, £97.00, not bad I thought. Still held at home it is an annual event on m…

- Volunteer Fundraiser

View our testimonials

Sienna’s story

The early intervention programme, has been such a comfort to us as we were doing something positive from pretty much day one for Sienna. The support and comfort that Cerebral Palsy Cymru provides means that the therapy doesn’t just stop with the child who receives it, the whole family benefits.

- Family Story

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Fred Soper

Bobath to me means I can give something back to my community. I was a customer at Crwys road and liked the atmosphere that the manager created. The volunteers are happy and the manager is kind-hearted and good with everyone so when I got the opportunity to volunteer my first choice was Bobath.

I esp…

- Volunteer

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Ffion’s story

Each visit to Cerebral Palsy Cymru’s therapy centre in Cardiff meant a 130-mile round trip to get to the centre but it was well worth it. The sessions were a great tool and taught us how to help Ffion and how to continue with her physiotherapy at home.

- Family Story

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