Useful Resources
There are lots of very useful resources from around the world for individuals living with cerebral palsy and their families.
Cerebral palsy is the most common physical disability in children. There are currently 17 million people in the world who have cerebral palsy.
In Wales no one knows how many people with cerebral palsy there are. This is why we are co-leading a project to develop a cerebral palsy register for Wales. https://cerebralpalsyregister.wales. Using data from other countries we think there are around 1800 children in Wales who have cerebral palsy and that approximately 70 babies are born every year in Wales who will be diagnosed with the condition.
The following are websites you may find useful:
The Canchild website has some excellent resources and a great team.
https://www.canchild.ca/en/resources/264-cp-the-brain-video
https://canchild.ca/en/the-icf-for-parents-p-icf
https://www.canchild.ca/en/research-in-practice/f-words-in-childhood-disability
https://www.canchild.ca/en/resources/266-letting-go-at-least-a-little-bit
https://canchild.ca/en/resources/237-motor-growth-curves
Pencru
http://www.pencru.org/evidence/
Scope
Cerebra
Nice guidelines
Nice spasticity guidelines
https://www.nice.org.uk/guidance/cg145
Nice managing cerebral palsy in under 19’s guidance
https://www.nice.org.uk/guidance/ng62
World cerebral palsy day
How we have helped in Wales
59
Family support appointments took place in 2024-25
300
Children from across Wales have been treated during 2024-25
1077
The number of sessions of specialist therapy we delivered in 2024-25
Renley's story
As a family, we have found Cerebral Palsy Cymru so helpful. The sessions have been very educational, and the emotional support we have received has also been truly amazing.
- Told by Mum, Alys
Harlow's Story
The early intervention service has given us clear guidance and practical activities to support Harlow at home. Their help has made a big difference in understanding her needs and in accessing further services. Harlow’s therapy sessions have truly been life-changing for her and for us as a family.
- Family story
Amber's story
Amber’s story is still unfolding, but because of the help and therapy from Cerebral Palsy Cymru, she’s writing it with confidence, support, and endless love behind her. We are endlessly grateful for everything the charity has done and continues to do for our family.
- Family Story
Noah's story
After our first therapy session, I left Cerebral Palsy Cymru’s children’s centre with something nobody had previously dared give me for my little boy. I left with hope.
- Leah, Noah's mum
Hopcyn's story
Better Start, Better Future has given us an inclusive, understanding, supportive community, a safe place free from judgement, surrounded by families who truly understand.
- Family Story
Therapy and support for children and their families
Cerebral Palsy Cymru is a registered charity in England and Wales 1010183. A company limited by guarantee. Registered company in England and Wales 02691690. Registered address: Cerebral Palsy Cymru, 1 The Courtyard, 73 Ty Glas Avenue, Llanishen, Cardiff, CF14 5DX.
