Useful Resources

There are lots of very useful resources from across the world

There are lots of very useful resources from around the world for individuals living with cerebral palsy and their families.

Cerebral palsy is the most common physical disability in children. There are currently 17 million people in the world who have cerebral palsy.

In Wales no one knows how many people with cerebral palsy there are. This is why we are co-leading a project to develop a cerebral palsy register for Wales. https://cerebralpalsyregister.wales. Using data from other countries we think there are around 1800 children in Wales who have cerebral palsy and that approximately 70 babies are born every year in Wales who will be diagnosed with the condition.

The following are websites you may find useful:

The Canchild website has some excellent resources and a great team.

https://www.canchild.ca/

https://www.canchild.ca/en/resources/264-cp-the-brain-video

https://canchild.ca/en/the-icf-for-parents-p-icf

https://www.canchild.ca/en/research-in-practice/f-words-in-childhood-disability

https://www.canchild.ca/en/resources/266-letting-go-at-least-a-little-bit

https://www.canchild.ca/en/resources/268-pain-prevention-and-treatment-in-children-and-young-people-with-cerebral-palsy

https://canchild.ca/en/resources/237-motor-growth-curves

https://canchild.ca/en/resources/23-if-i-knew-then-what-i-know-now-parents-reflections-on-raising-children-with-cerebral-palsy

 

Pencru

http://www.pencru.org/evidence/

 

Scope

https://www.scope.org.uk/

 

Cerebra

https://cerebra.org.uk/


Nice guidelines

Nice spasticity guidelines

https://www.nice.org.uk/guidance/cg145

Nice managing cerebral palsy in under 19’s guidance

https://www.nice.org.uk/guidance/ng62

 

World cerebral palsy day

https://worldcpday.org/

How we have helped in Wales

138

Family support appointments took place in 2020-2021

257

Children from across Wales have been treated during 2020-2021

626

The number of sessions of specialist therapy we delivered in 2020-2021

Noah's story

After our first therapy session, I left Cerebral Palsy Cymru’s children’s centre with something nobody had previously dared give me for my little boy. I left with hope.

- Leah, Noah's mum

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Ben's story

We left that initial therapy session on an absolute high and haven’t looked back since!

- Alison, Ben's mum

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Charlotte's blog

Hi, my name is Charlotte and I have just turned 15. I have recently taken part in Cerebral Palsy Cymru's 'Independent Living Skills Programme' and I would love to share my experience of the project with you. 

- Independent Living Skills 2021

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Cora's story

From that day we feel we have been part of the Cerebral Palsy Cymru family, and we have not looked back.

- Family story

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a girl in a park with her mum

Aoife's Story

Having virtual sessions opened up a new avenue of skill-building for Aoife

- Family story

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